CTCA in June 2013

Fast trip this time. Robbin and I left Sunday morning and got back Monday night. Seems we weren't even gone. When we got to the hotel the first thing we had to do was go eat cheese curds and a cheesehead dream hamburger. Yummy! We then walked over to the outlet mall. Didn't do much shopping. We just wanted to get some exercise. After going to bed early we arrived at CTCA at 6:20am. I had a blood draw, we ate breakfast then met with Dr. Neelam and the rest of the team. The blood tests showed mild increase in the cancer growth. The chemo Afinitor is working and the doctor was happy with that. She still wants me to be on the highest dose so I am slowly introducing that in. I take 7.5mg and every 3 days take a 10mg. After two weeks of this I will be on 10mg every night. I took 10mg Monday night and didn't have much of a side effect. The main effects are fatigue and pain. My doctor says it will even out after my body gets use to it. Since my appt in May I have had a very difficult time getting through a larger dose of chemo. My biggest complaint is fatigue. The pain is controllable. I just get so tired of seating around all the time. My concentration levels are effected so there isn't much I can do. I'm not one that likes to sit around. It depresses me so I work hard at changing my attitude to more positive thoughts. I'm losing weight and my doctor doesn't like that so I've added a protein drink and changed to a high protein diet. I really do feel better. Another side effect is restless leg. If you have ever experienced this you know how difficult it is to get through it. Most annoying thing ever!! My homeopathic doctor has increased the magnesium dose and this is helping so much. I am to call the care manager in a week and report the progress of the chemo pill. If all goes well I don't have to go back until August 1st. I am feeling very blessed once again that God is in control of all this! He has given me the wisdom to do what is right for my body and is showing me there is still hope. Wendy and Patti and their families have been coming in to help with everyday things. This is a huge relieve for Robbin since he is having to do everything inside the house and outside. He loves keeping busy but will burn out soon if we don't have help. So I thank my girls and their families for all they do. And I thank Robbin for being the best caregiver! He's amazing me with everything he accomplishes and never gives up! God Bless all of you!